Showing posts with label update. Show all posts
Showing posts with label update. Show all posts

Wednesday, September 17, 2014

States are finally putting the Right To Try law in effect.



The "Right To Try" law allows terminally ill patients to obtain experimental drugs without getting federal approval. 

The Hopes & Dreams Quilt Challenge for ALS was started by Quilters Dream Batting owner, Kathy Thompson in efforts to raise awareness and funds for this awful disease. Kathy's son, Josh was diagnosed with ALS in 2007. After many promises from the FDA and much time spent working to get the necessary treatments, Josh was denied access to a possibly life saving medicine, crippling this young man's ability to live and hindering his quality of life. 

In the video below, Kathy shares her story. 







However, there may be a bright side for patients suffering from terminally ill diseases. 

So far, five states including Colorado and Louisiana have jumped on board and put the Right To Try law in effect! 

Goldwater Institute's  Senior political advisor, Lucy Caldwell, interviews with Fox News about how this law could save many lives. 






Like most things, this law has caused debates and controversy. What's your take? Hope your state passes the law if it already hasn't? Leave us a comment. 





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Tuesday, August 19, 2014

End of year 2014 Challenge update




First and foremost, we would like to thank EVERYONE who participated in the 2014 Hopes & Dreams Quilt Challenge for ALS! We are currently still in the process of wrapping up the 2014 challenge.

We received SO many quilts this year and hope you will be patience with us as we continue to log them in. Once that's complete, we will be able to post our "Sew Popular" contest on our Facebook page for you all to vote! We will also be announcing the category winners shortly after that. 

August 1st marked the 2015 challenge year and we have already been getting in tons of new quilts and prize donations from many new sponsors! We sincerely appreciate your time and efforts and hope you will continue to join us in raising awareness and much needed funds to help find a cure for this disease. Stay tuned...