 The drug company, Genervon, a small biotech, is doing the unheard of in ALS. In early February, Genervon, is going to meet with the FDA to ask for accelerated approval for its drug, GM6, for ALS. This trial drug was tested on 8 ALS patients and it has helped, slowed or stopped their ALS progression! PLUS, a ventilator patient (like Josh) who has had ALS for 9 years, took the low trial dose of GM6 --- and it has helped him with breathing, speech and swallowing! We need your help (again)!  There is an important petition on Change.org requesting Congress to support us in asking the FDA to approve this drug NOW. It is very important to get the maximum number of signatures for maximum impact to influence and achieve drug acceleration and approval. I am asking that you please take a moment to sign this Change.org petition asap (see below)-- and forward this to your contacts and share on your Facebook page - asking for as many signatures as possible. Also...please consider submitting a request directly to the FDA (link below). This drug could possibly help Josh and all of our friends currently living with ALS. If GM6 receives accelerated approval - it's the only drug close to having a chance of helping Josh and today's ALS patients. Without accelerated approval of GM6 - today's ALS patients do not have any medication options to help them. How you can make a difference: 1. Go to https://www.change.org/p/food-and-drug-administration-preliminary-approval- of-genervon-gm6-for-use-in-als and sign the petition asking the FDA for conditional approval of GM6. 2. Go to http://www.accessdata.fda.gov/scripts/email/cder/comment.cfm and submit a comment to the FDA supporting conditional approval of Genervon GM6 for people with diagnosed ALS. 3. Write your congressperson and senator asking them to urge the FDA to grant conditional approval. 4. Share this post on every social media you use. This message needs to go viral. Thank you so much (again), Kathy Thompson  |
Thursday, January 22, 2015
Petition for GM6 drug that could help ALS patients.
Wednesday, January 21, 2015
Featured #battgirls (January) If These Threads Could Talk/ Jackie O'Brien
Featured #battgirls (January)
If These Threads Could Talk/ Jackie O'Brien
If you read our last blog, you'll know that Jackie O'Brien used to work with us at Quilters Dream. She took her quilting talents and spunk with her when she moved from Virginia to New York.
Known as the "Quilt Ninja", Jackie has made over 200 quilts since her first in 2004. She has also quilted over 50 One Block Wonders and is proud to be a Studio 180 Design Certified Instructor.
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"I love taking something that has no form and giving it form. There is something about making a quilt that makes me feel as though I’ve created something special."
Jackie's statement rings true to us in the office as well. Knowing how much Neva loves Wizard Of Oz, Jackie surprised her with this adorable tote....just because! Neva loved that she added a famous line from the movie in embroidered letters too.
If you ask Jackie what her favorite Quilters Dream Batting product is, she will tell you...
"I’m a cotton girl so I would say my go to is Dream Select. But if it is a special quilt I absolutely love, I'll use Dream Orient. It is so soft the quilt just drapes in your arms."
Read on to check out some of her amazing work. You can also click each title to read in more detail about each quilt on her blog!
The new year looks busy for Jackie. Waiting for a new frame for her quilt machine, she already has 7 quilt tops lined up to finish.
Keep Up with If These Threads Could Talk/ Jackie O'Brien:
Blogs & Tutorials: http://ifthesethreadscouldtalk.com/
Instagram: http://instagram.com/quiltninja
Friday, January 16, 2015
Featured Quilt Shop: Sew Nice in Norwich, NY
Located in Norwich, NY, sits a fabulous quilt shop owned by Diane Marvin which she opened in June 2005. Jackie O'Brien, a former Quilters Dream employee (we miss you) recently moved to New York. She was sweet enough to stop by Sew Nice and ask Diane a few questions for us. We're pretty sure she got her shop on while she was there too- who wouldn't?
Diane’s career was in education. Her mother was a career woman that made her own stylish suits to wear to work. Diane had no interest in sewing until she made her first quilt around 2000 – it was love at first stitch!
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Diane holding up her almost finished quilt top “Northern Neighbors”. |
The quilters that gather at Sew Nice refer to it as their “Quilting Playhouse” and as a “Cheers” for quilters. Quilters lovingly refer to Diane as “The Pusher”, (quilt pusher that is). You go to see Diane at Sew Nice to get your quilt fix! Diane gently pushes you to always keep learning and try new quilting techniques.
Diane is a Studio 180 Design certified instructor. As is Donna Hanley who also teaches there.
Sew Nice is a “Certified Bernina Classroom Shop”. They carry fabric lines from Moda, P&B, Marcus, Benartex, Timeless treasures, Kona, the list goes on. I love that they have a whole aisle devoted to polka dot fabric.
Sew Nice offers a 24 seat classroom. And if that is not enough, they also offer general sewing machine repair and maintenance.
Sew Nice only sells Quilters Dream Batting (QDB). When I asked why, Diane said:
* It’s made in the USA
* NO other batting can compare with QDB quality.
*There is no minimum order.
*And last but not least “QDB Customer Service!" Diane could not praise their customer service enough. She feels QDB is one of the best companies she has dealt with.
If you live in the area and are looking for a quilt home you will be so welcomed at “Sew Nice” because they are so nice!
Stay tuned for more about Jackie O'Brien in our upcoming Featured #battgirls January blog!
Jackie's Blog: www.ifthesethreadscouldtalk.com
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